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    You are here : Home » Get Involved » MSRC Interactive » Help, Advice and Inspiration from people with MS » What Has Helped You » Medical / Supplements » Cannabis/Sativex

    Cannabis/Sativex

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    Cannabis is definitely good - name and address withheld

    CannabisRegarding Cannabis-Good or Bad?

    I was lucky to be on the first ever trial for cannabis to relieve pain. The results in my case have been nothing but positive. The negative sides were nausea and slight anxiety, which only lasted 24 hours. No other negative symptoms have appeared.

    As for it being habit-forming, on a couple of occasions I have forgotten to take it before going to bed, but when the pain starts, I have to get up for it. I would not think that is exactly habit-forming.

    Being virtually pain free over the last fifteen months has definitely improved my quality of life. Having signed the form at the beginning of the trial, I am not able to give my name and address.

    Success with Cannabis - Mrs Marg Wilson - Oadby, Leicester
    Ten years ago I went to see a herbalist for the time. Many prescriptions later I was delighted to be accepted onto the Leicester Royal Infirmary cannabis trials.

    I have now reached week 11 of 15 week trial and I can now report the following which relate to me:

    • I have said “good-bye” to Diazepam.
    • At least 6 hours uninterrupted sleep.
    • Improved circulation.
    • Fewer spasms in my legs.
    • Improved bladder control.
    • Improved appetite.
    • No recognised adverse side effects.
    For me it is another success for herbal treatment.

    Cannabis Spray helps me with my bladder - Brian White

    My bladder is virtually back to normal after taking part in a trial to see if cannabis can reduce bladder frequency.

    I am afraid I must own up to watching daytime TV. (Confession is good for the soul). One of the programmes to which I have become addicted is Channel 4's 'Countdown'. As if to prove the existence of serendipity, a recent word was 'pothead' - a word I have not heard since my semi-hippy days.

    I cannot afford the edition of the Oxford English Dictionary used on the show, and the word is not in the shorter edition, but it is defined in 'Encarta' as "somebody who regularly smokes cannabis"

    Although I suppose I am a creature of the Swinging Sixties, about the only excess of that era in which I did not participate was drugs - despite running a jazz club in Cambridge - cool man!

    When I first joined the trial I was ruled by my bladder. I was going to the loo a ridiculous 25 - 30 times a day and half a dozen times at night. So I was very pleased when consultant Clare Fowler at the National Hospital enrolled me in her cannabis study.

    To begin with, I had visions of being in the local pub when it was raided, and being able to show the nice policeman a letter signed by the Queen Mother saying that I was authorised to be in possession of a joint.

    But my fantasy was wrong. The drug used in the national trial is not smoked, but sprayed under your tongue. It doesn't taste that nice, but it's OK.

    My first administration took place in consultant Cieran Brady's clinic. It resulted in me showing balance even worse than usual, and in me being very silly, a state which was magnified when I had my second dose at home.

    As well as silliness, I had hallucinations of flying pink pandas - in fact I displayed all the signs of being 'tired and emotional' (i.e. drunk) but without the hangover. The cannabis trip was by no means unpleasant, though mildly embarrassing, and went on for perhaps half and hour. There were no lasting after-effects and I have not hallucinated about pandas since.

    As with everything to do with MS, arriving at the correct dosage is a very personal matter. One of Cieran Brady's patients is on 15 sprays and has shown no effects at all, whereas my four sprays produced a show funnier than Des O'Connor - not that that's very difficult. After a bit of trial and error, we got my dosage down to one spray on going to bed. So far, the results for me have been good. My balance is now back to normal (although not quite up to Olympic high wire walking standard - in fact a long way off).

    But the best thing is that my bladder is virtually back to normal. I am now down to half a dozen visits to the loo during the day, and only one at night. Both the frequency and urgency have been significantly reduced. The difference is remarkable.

    My Sativex story - Steve Lumis
    Hi,

    My name is Steve Lumis and was diagnosed with MS in 2001. After having so many people asking me about the trial for the cannabis spray, Sativex,  I was going to particicate in, I thought it would be a good idea to let other people who are interested or curious to know about the effects of this treatment on me.

    After being asked by my GP in November 2004, I jumped at the chance to be selected for the trial. I have to add that I have tried cannabis and am familar with its effects.

    She then wrote to a Dr Nottcut who was conducting the trial at The James Padget Hospital in Golston Nr Great Yarmouth.

    It was well into March 2005 when I received a letter from Dr Nottcut saying he would be pleased to have me on the trial. The trial was a double blind placebo trial, meaning nobody knew who was getting the real stuff or the dummy one.

    Anyway I guessed I was on the dummy one, as I didn't notice anything different throughout the trial which lasted 15 weeks.

    At the end I did receive Sativex and I have nothing but praise for this drug. It has helped with sleeping which I didn't do much of before, it has stopped my spasms by 80%, it is very good for urinary problems, meaning I don't have to "go" half as much, and, even through the night not needing to go. One of the biggest things is it has killed my depression which, before Sativex, my wife said I was getting unbearable to live with!.

    9 months on it is still working good.

    My current situation is changed since then and I am now confined to a wheel chair so it hasn't stopped that part, but at no time did Dr Nottcut say that my walking would be helped so that has nothing to do with that side of things.

    I am still praising Sativex because of all the other plus points. I just hope that it will soon be passed so anyone has a chance to try it.

    Steve

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