Although thought to be relatively uncommon, it is fast becoming clear that there is a gathering number of children and teenagers being diagnosed with Multiple Sclerosis around the world. We hope to bring you as much information as possible with regards Paediatric MS. If you are the parent of a child who has been diagnosed with MS, or a child/teen with MS we would like to hear from you. Further Information
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Dear Friend, I Have MS: A Book for Friends Of Teens With Multiple Sclerosis | |
You can read the book online, or download it from http://www.pediatricmscenter.org/Elaine.aspx
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Keep S’Myelin | |
Current and past issues can be downloaded from the link below or obtained, in the US, from your local society chapter. Games (equally appropriate for children diagnosed with MS) include jokes and riddles, interactive games, comics, family activities, and more. Website: http://main.nationalmssociety.org/KS/archives/issue1/index.html
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Kids Get MS Too - Parents Handbook | |
In addition to detailed information about MS and its effects in paediatric populations, the handbook also provides information about programs, sponsored by the National MS Society and the MS Society of Canada, that provide a support network for children and teens with MS, their parents and siblings. CLICK HERE to view the handbook. (Requires Adobe Acrobat Reader DOWNLOAD FREE)
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MSRC Paediatric Multiple Sclerosis Pages | |
We hope to bring you as much information as possible with regards Paediatric MS. If you are the parent of a child who has been diagnosed with MS, or a child/teen with MS we would like offer you all the assistance we can. Email: [email protected] Website: http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/1460
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Pediatric MS Centers of Excellence (USA) | |
The centers were selected (through a peer review process) on the basis of having multidisciplinary teams of adult and child specialists; ties to an adult MS center; staff to evaluate and address school and other psycho-social issues; support for families; and the ability to work collaboratively with other institutions in the network. Full details: http://www.nationalmssociety.org/about-multiple-sclerosis/pediatric-ms/pediatric-ms-centers-of-excellence/index.aspx
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Social Network Sites - The Pediatric Multiple Sclerosis Alliance | |
The group is designed to provide information, create awareness, provide a network of support for families, and promote a better understanding of pediatric multiple sclerosis. Many parents have found they can chat, vent, question, etc. the disease and how it affects their children and families within the safety of the group and with the friends they meet here. And though opinions are welcome and respected, the Alliance requests that no controversial topics are discussed or argued. The Alliance also allows the opportunity for parents to celebrate their child's life and accomplishments through stories, photos, and frequent inspiring posts! Though we have members from around the world, our group is small (but growing!). Help us bring greater awareness and attention to pediatric MS...Please find us on Facebook and join Pediatric Multiple Sclerosis Alliance.
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Social Network Sites - Parents With A Child Who Has MS | |
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Social Network Sites - UK Pediatric MS Group | |
Email: [email protected] http://www.facebook.com/home.php?sk=group_181376848543546&ap=1
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Students with MS and the Academic Setting: A Handbook for School Personnel | |
It is important that school personnel - teachers, nurses, administrators, bus drivers, etc, - become aware of the ways pediatric MS may affect your child at school. Academic accommodations or modifications may be necessary to minimize the effect MS may have on the student’s learning and academic performance. Although it is easier to respond to symptoms which are easy to see and understand (e.g., walking difficulties, balance problems, or tremor) than less obvious symptoms like fatigue and cognitive changes, all symptoms are equally important to recognize. Specific physical and emotional stressors which students with MS may experience in school include:
You can read and/or download a copy of this useful booklet here.
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Teens and MS | |
How to register:
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The Mighty Special Kids Activity Book | |
The booklet is designed to help families talk about MS and educate children who are diagnosed with MS. It includes games, interviews with kids who have MS, and family activities. In North America you can request a copy of this booklet from your local society chapter or check it out in an interactive online form. Website: http://main.nationalmssociety.org/MSkids/about/about_edition.html
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The Pediatric Demyelinating Diseases Foundation (www.pddfoundation.org) is an organisation created for families with children with Multiple Sclerosis and other demyelinating diseases. While we focus on paediatric MS, we give information and links to the Transverse Myelitis Association for NMO, ON, and TM. Our goal is to raise awareness for the paediatric diseases and connect families across the world. Ultimately, we would like to be able to raise funds that would directly serve paediatric MS and demyelinating diseases, create “meet & greets” worldwide for families. The organisation was born from the overwhelming response from our Facebook group, Pediatric Multiple Sclerosis Alliance (http://www.facebook.com/#!/groups/PMSalliance/). Our desire was to reach those families, parents, & caregivers that did not utilise Facebook and give them a place to find information, read stories about REAL children with MS, and perhaps gain a contact to reach out to. A spin off from the Alliance FB group is a group designed specifically for kids with MS; a place for them to post, chat, and connect is Pediatric Multiple Sclerosis Group – Unite, Believe, Cure (http://www.facebook.com/#!/groups/320497841301336/). This group was started by a teenage girl in Arizona who wanted to connect with other MS kids. The PDDF was created by not a mother of a child with MS but a woman with the disease who found her passion and mission with the children. The children are her daily inspiration that if they can do it, so can she! Website: http://www.pddfoundation.org
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The Snowdon Award Scheme - help for disabled students | |
The Snowdon Award Scheme is a charity which helps disabled students with aid to be able to remain at University or College. For more information on what they do drop them a line, give them a ring, or visit their website. The Snowdon Award Scheme Unit 18, Oakhurst Business Park Wilberforce Way Southwater West Sussex RH13 9RT Telephone: 01403 732899
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Young MS | |
![]() The Kids section features “Sparks, Volts, and Joules” robotic hosts eager to answer questions which kids may have regarding MS. The information is specialised both for children who have been diagnosed with MS and for those who know somebody else diagnosed with MS. The Teen section of Young MS has various sections. In the Life and MS section, registered users can post to a message board. The Got Questions? section covers the most common questions and features real people and their real stories. Website: http://www.youngms.org.uk/Home
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Young Persons With MS Network - A Network For Families With A Child Or Teen With MS | |
Young Persons with MS: A Network for Families with a Child or Teen With MS is a collaboration between the MS Society of Canada and the National MS Society (USA) (NMSS). It is a support network that provides multiple program options for families living with a child or teen who has been diagnosed with multiple sclerosis. For more information on childhood MS, specific programs and resources, or to join the Young Persons with MS Network, please contact: Canada Coordinator of the National Information Resource Centre Phone: Toll free within Canada: 1 866 922-6065 Email: [email protected] United States National Multiple Sclerosis Society Phone: Toll Free: 1 866 KIDS W MS (1 866 543-7967) E-mail: [email protected] Website: http://mssociety.ca/en/pdf/YoungPersonsMSform.pdf © Multiple Sclerosis Resource Centre (MSRC)
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Related Items |
Children with MS |
Multiple Sclerosis in Children |
Paediatric Multiple Sclerosis News |
Teenagers With MS |
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