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    You are here : Home » Get Involved » MSRC Interactive » Tysabri® User Diaries » Laura's Tysabri Diary

    Laura's Tysabri Diary

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    I was diagnosed with Relapsing Remitting MS in April 2010 at the age of 19. My first 'episode' was in September 2009, resulting in my hospitalisation in the October.

    After lots of blood tests, a week on the stroke ward and a week on the neuro ward, I was told it was probably MS but couldn't be diagnosed without another episode. My symptoms at this time were foot drop and fatigue. I was given 'Foot Ups' and then plastic splints to help me walk and an IV course of steroids. My second episode in April 2010 affected my eyes, which have given me trouble on and off ever since.

    I was given Betaferon in July 2010 and after 18 months of this was told that it wasn't really working for me. My consultant recommended I start Tysabri, and initially I was terrified and adamant I was not going to be having it, but after a long discussion with my MS nurse I agreed that it was the right treatment for me.

    So here I am, just starting my Tysabri journey! I hope you enjoy reading my diary, and that it may be helpful to someone out there who is in two minds about starting treatment.

    Laura :)

    Tysabri Number 1 - 30th January 2012

    I was very nervous about my infusion as it was right at the end of the day and I had to work before my appointment. It also didn't help that we couldn't find anywhere to park at the hospital and it was pouring down with rain!

    When I eventually signed in and made my way to the unit, my MS nurse gave me a little tour and had a long chat about my general wellbeing and my work-life balance (I still work full time...for now!). The nurse who collected me to take me to the ward was lovely and friendly and really put me at my ease. I was quite scared about having the cannula insterted as I'd only ever had one done before and it was a really bad experience, but the nurse was really good and it was less uncomfortable than some blood tests I've had done.
    Before I knew it, my infusion had finished and I was observed for a short while before being allowed to go home. The only after effect I experienced was tiredness (different to the normal fatigue I feel) which made me slur my words and I had difficulty getting the right words to come out in the right order. The whole process was actually a good experience and I got chatting to some lovely people on the ward who were there for chemotherapy (didn't meet any other Tysabri-ers this time).

     So overall, it was nothing to worry about at all and I can't wait for the next one!

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